It has been a year since my life changed forever. On March 21,2017 I underwent a very dangerous brain stem biopsy. The odds were high that I’d die on the table, but I just wanted to know what was happening in my brain, as no doctor was able to diagnose me.
By the time I had surgery, I had already lost the ability to swallow food and walk.
The days afterwards were quite miserable, as has this whole experience.
I stayed in ICU for about 2 weeks after the biopsy. I then moved to the acute brain injury and stroke floor #7 for another two weeks.
Then I moved to the rehab floor #8 for another month.
I spent about 2.5 months total in the hospital.
Fast forward to today! After about a year of therapy, I was able to eat a plate of pancakes and I’m able to walk in an aluminum walker. I have the MOST AMAZING support system, including my truly awesome boyfriend, Robert and his family. My mom and aunt and my family and friends have all been doing so much for me! I am eternally grateful 🙏❤️
After months of being undiagnosed, I was finally given the diagnosis of Tumefactive Multiple Sclerosis. I’m doing everything I can to manage and heal.